New York, 2016.What are ones experiences after being diagnosed with Multiple Sclerosis in your twenties during the peak of your social life? How do you begin to live your new life in a body that is familiar and yours, but now feels foreign? Alvarado’s photographs in “You Don’t Look Sick” document Robert Sanganoo’s daily life and adversities living with Relapsing-Remitting Multiple Sclerosis over the course of two years. At a time when most adults in there twenties are pursuing a career and meeting significant people, Robert takes his days at a pace unimaginable to the normal person. From physical therapy to at home workouts, Robert wants to no longer just survive this disease. Having come a significant distance from the day he was first diagnosed, this positive direction comes at time when our state of government in regards to health care may look to hinder the lives of our sick. Unable to work due to his body’s condition, Robert is dependent on the health care our government supplies, with a rift to it bringing serious repercussion for him and his progression towards a productive life. This essay will be his first time openly speaking about his battle with anyone outside family and people sharing the same fight. With the purpose to open more conversations about this disease and to continue finding a cure.
“I was first diagnosed with relapsing-remitting multiple sclerosis in 2011 at the age of 21. Prior to my diagnosis I had been an active person, playing sports my entire life. Once I was diagnosed my body began to quickly change. My mobility started to deteriorate and I haven’t been able to run since. I’ve been stuck in a depressive state stemming from even before knowing I had M.S.. I began doing some personal research, but even with the information I have read, I am still ill informed on the disease I am facing. This will be my first time openly speaking about my battle with this disease with anyone outside of my family and the people I have met facing the same struggle. I no longer want to just survive.”
Robert S Sanganoo Jr, New York City, 2012; National Multiple Sclerosis Society, Southern New York Chapter.____________________________________________________Published by Aint-Bad, see (here.)